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SDS Events - Global

Community Calendar

Mai 2024
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15:00
Global SDS Family Coffee Chat
+1 weitere
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Upcoming and Past Events

  • Global SDS Family Coffee Chat
    Global SDS Family Coffee Chat
    Mehrere Termine
    So., 12. Mai
    Virtual event
    Global SDS Family Coffee Chat
    12. Mai 2024, 15:00 – 17:00 GMT-4
    Virtual event
    Monthly virtual get-together to build community and support.
    Teilen
    Registration Info
  • SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    Sa., 13. Apr.
    free virtual event
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    13. Apr. 2024, 13:00 – 19:00 GMT-4
    free virtual event
    This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
    Teilen
    Details
  • POPS: Global Patient Advocacy and Partnering Summit
    POPS: Global Patient Advocacy and Partnering Summit
    Sa., 20. Mai
    Virtual event
    POPS: Global Patient Advocacy and Partnering Summit
    20. Mai 2023, 10:00 – 15:00 GMT-4
    Virtual event
    The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
    Teilen
    Details
  • 10th International Congress on Shwachman-Diamond Syndrome
    10th International Congress on Shwachman-Diamond Syndrome
    Di., 18. Apr.
    Robinson College, Cambridge, UK
    10th International Congress on Shwachman-Diamond Syndrome
    18. Apr. 2023, 09:00 GMT-4 – 21. Apr. 2023, 13:00 GMT-4
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
    Teilen
    Details
  • 4e journées des neutropénies (4th French National Neutropenia Days)
    4e journées des neutropénies (4th French National Neutropenia Days)
    Fr., 24. März
    Paris
    4e journées des neutropénies (4th French National Neutropenia Days)
    24. März 2023, 09:00 – 16:00 MEZ
    Paris, Paris, France
    Nous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
    Teilen
    Details
  • SickKids Canada - National MFM Virtual Patient and Family Conference
    SickKids Canada - National MFM Virtual Patient and Family Conference
    Sa., 30. Apr.
    Virtual
    SickKids Canada - National MFM Virtual Patient and Family Conference
    30. Apr. 2022, 12:00 – 18:00 GMT-4
    Virtual
    The National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
    Teilen
    Details
  • Fun-Run-Walk October 2020
    Fun-Run-Walk October 2020
    Sa., 24. Okt.
    Virtual run/walk, location of your choice
    Fun-Run-Walk October 2020
    24. Okt. 2020, 07:00 GMT-4 – 01. Nov. 2020, 23:00 GMT-5
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
    Teilen
    Details
  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    So., 12. Juli
    Camp Sunshine, Cosco, ME, USA
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    12. Juli 2020, 14:00 GMT-4 – 16. Juli 2020, 10:00 GMT-4
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
    Teilen
    Details
  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Sa., 29. Feb.
    Painting with a Twist, North Andover, MA
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    29. Feb. 2020, 14:00 – 17:00 GMT-5
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
    Teilen
    Details
  • SDS Registry Family Day in Boston, MA, US
    SDS Registry Family Day in Boston, MA, US
    So., 15. Sept.
    Boston, MA
    SDS Registry Family Day in Boston, MA, US
    15. Sept. 2019, 08:00 – 16:00 GMT-4
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
    Teilen
    Details
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