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Stay in the loop on cutting-edge SDS research, news, and events from around the world. We will send out an email newsletter a few times a year, and pressing updates as needed. We promise to keep the contents highly relevant and NOT to spam you. Welcome to the SDS community. Subscribe today!
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Past Newsletter Editions
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05/10/2023 - Register for SDS POPS today! 👏 Agenda and Speakers announced
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04/13/2023 - 2 EVENTS 🤩 SDS POPS - Virtual Patient Summit ⛰️ May 21st and Storytelling Workshop April 29th
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03/02/2023 - T-shirt design 👕🎨 contest due March 8 for Global SDS Awareness Week
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12/31/2022 - SDS Alliance News: Happy New Year and 🗓️ 2023 Kids' Calendar
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12/28/2022 - SDS Alliance News: Meeting with FDA, 🧪 SDS Cell Biobank Pilot Success, Year-end Fundraising
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11/13/2022 - SDS Alliance Fall News: iPSC Project; Whitehouse Cancer Moonshot; Three Million Steps success
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08/30/2022 - SDS Alliance August News: Mouse Update, Three Million Steps Closer to #CureSDS fundraiser
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05/15/2022 - SDS Alliance May News: SDS Week, Neutropenia Clinical Trial, Milken Institute, Spanish Calendar
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02/28/2022 - SDS Alliance February News - Rare Disease Day Action and Impact
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11/03/2021 - SDSAlliance November News - CZI Rare As One Grant!!!
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10/10/2021 - SDSAlliance September News - Three Impactful Events
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08/28/2021 - SDSAlliance August News - Last call for T-shirts, Two Million Steps, Research Strategy & Roadmap
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06/22/2021 - SDSAlliance June News - All About The Mouse
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10/02/2020 - SDSAlliance Fall News - SDS Snapshot Science Series, One Million Steps, Global SDS Awareness Week
The Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a US-based 501(c)(3) nonprofit organization serving the global SDS community to improve and save the lives of people affected by SDS by focusing on research and therapy development.
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